Health Data Privacy Challenges for a Technologically Advanced Health Ecosystem

Federal and state regulations surrounding health data privacy are being revisited, and new ways of thinking about the privacy of one’s data more generally are being developed to keep up with the challenges that advances in technology present to the public. In this session, hear from industry experts on how the lack of clarity regarding the scope of HIPAA, who is obligated to abide by HIPAA, as well as how it is interpreted, enforced and intersects with other privacy laws has created significant gaps in compliance and enforcement. As healthcare delivery becomes more global, the panel will also consider where further guidance is needed as we move closer to cross-jurisdiction and geographic alignment between HIPAA and the European Union’s (E.U.’s) General Data Protection Regulation (GDPR).

Learning Objectives

• Describe why health data privacy laws, at the federal and state levels, will need to evolve as the needs of patients shape new ways of delivering healthcare and technology progresses to assist in that transition
• Discuss how the intersection between laws and regulations at federal, state and interagency level create hurdles in compliance with both protected health information and non-protected health-related data
• Identify areas where greater education and government support are necessary to facilitate greater patient engagement and education in health data privacy rights of access as well as protections stemming from newer and upcoming changes in privacy laws

Other Speaker(s)

Jennifer Bernstein, Deputy Director, Mid-States Region, The Network for Public Health Law

Deven McGraw, Co-founder & Chief Regulatory Officer, Ciitizen

Petra Wilson, PhD, European Program Director, Personal Connected Health Alliance (HIMSS)